Finding the #MillionsMissing
Snail4.ME
Homes for #pwME
Who are #pwME?
What is M.E.?
Why Snail 4 M.E.?GoFund Snail4.MEOther Help?
Safe 4 M.E.
Many #pwME have little personal safety or security, often because they fell sick early in their lives, and had no chance at home ownership.
Help 4 M.E.
One Size fits NONE for #pwME , each person might have variations of symptoms and co-morbidities, and how much each of these affect person is also different.
We can only help a few at f, but if you help us, it will be a few more, or a few hundred more, or…
Security 4 M.E.
#MillionsMissing is a campaign for #pwME because we miss out on much of life, stuck in our houses, or bedrooms, usually rentals, while life passes us by.
Respite 4 M.E.
Others simply need a break, for either themselves, or their carers.
Or an easy way to try new technology or accessible modifications that might improve M.E. lives.
Solutions
a Home 4 M.E.
We can’t afford houses, but a variation on novated leasing that could get us into Motor Homes?
I haven’t had a holiday in more than a decade. Not having a job might seem like a holiday, but for workaholics like many of us were, it is more like torture.
I love our world, I used to love hiking in the wilderness, riding a mountain bike through it, photographing it. Now I don’t even own a camera.
Waking up to a new view might help us miss out on less, and enjoy life more.
Transport 4 M.E.
How can the #MillionsMissing miss less?
Travelling to other cities for weddings or birthdays
can be more exhausting than running a
marathon for a #pwME.
Travelling slowly, rest stops as needed,
or driven slowly, all the way in bed?
That should work.
Respite 4 M.E.
Some people just need a break, or their family or carer’s do.
A stay in a normal hotel room may NOT be a break for #pwME, we have many special needs.
Yet packing, transporting, and setting up all the things (twice) that might make allow a restful can be so complicated and laborious for us that the net result is still negative.
What if it were more accessible, and they could maybe try out different adaptive technology and aides while there?
A restful break indeed.
Build a Van 4 M.E.
If your needs are more diverse, maybe we can build a van or motorhome for you.
Skyla is very keen on working on this front.
Share 4 M.E. +
House Cleaned 4 You!
Many of us struggle to find somewhere to live, that is quiet , maybe chemical free (for those with MCS) , friendly, and non-judgemental.
I + some others do have NDIS support to help me with house duties and food prep, so you can potentially get a weekly house cleaner + more, for free!
Just vacuuming is impossible for me, but not others.
We really wish we could work, many of us were workaholics once.
Home-share organisations exist in most large cities, and have well-defined agreements to help share this way.
They are not very active in many cities, like Canberra.
Let’s change that, together!